DCSIMG

Big hearted students cycle for PWSAI

Professor Philip Nolan, President of NUI Maynooth (in a suit at the back) joins students and supporters of the Galway Cycle at the launch of the event.

Professor Philip Nolan, President of NUI Maynooth (in a suit at the back) joins students and supporters of the Galway Cycle at the launch of the event.

At 6.30am on the morning of Friday, March 28, 250 cyclists will leave the campus of NUI Maynooth, turn right and head for Galway.

All going well, they will arrive into Eyre Square at approximately 5.30 that evening.

The cyclists and their support crew and supporters will be taking part in the 27th edition of the Galway Cycle which has raised in excess of €1 million for children’s charities such as Jack and Jill Children’s Foundation, Headstrong and Cystic Fibrosis Association of Irelande over that time.

This year they are hoping to raise much needed funds for the Prader Willi Syndrome Association of Ireland.

Prader Willi Syndrome is a rare genetic disorder that affects approximately 100 people in Ireland.

It is characterised by a chronic feeling of hunger, low muscle tone and delayed development amongst infants and children.

It is so rare that parents often need to educate doctors and other medical professionals about it.

There is a distinct lack of appropriate information available to both parents and medical professionals.

The Galway Cycle is hoping to raise greater awareness of the condition.

And it is hoped that with the funds raised by the big hearted students, information packs will be developed and provided to new parents and all those who work with people with Prader Willi.

PWSAI was established by and is run entirely by the parents and families of people with Prader Willi Syndrome on an entirely voluntary basis.

On Saturday, March 29, the cyclists will take to the streets of Galway collecting for the PWSAI.

And on Sunday, March 30, they will get up early once again, remount their bikes, and cycle back to Maynooth, aiming to arrive back at 6pm that evening.

It’s a total of 400kms over the weekend.

The Galway Cycle attracts people from all walks of life, from Professor Philip Nolan, the president of NUI Maynooth to local cycling enthusiatis.

 

Comments

 
 

Back to the top of the page