THE HSE has said it is committed to work with the Guihan family in Leixlip about care for their two young twins Shay and Finn, writes Henry Bauress
“The HSE is in regular contact with the family and will be meeting with them this week. The HSE is committed to continue the work with the family in an effort to put together a package of care that is appropriate for the needs of the two boys.” said HSE spokesperson, Arlene Crean, on 15 July.
The case of the Guihan twins was raised in the Dail recently by Kildare North TD, Catherine Murphy.
Shay and Finn Guihan are the only twins in Ireland with Pfeiffer Syndrome, which is when the skull plates fuse together too soon.
The two-and-half-year-old boys both each had a tracheostomy to help them breath, and need 24/7 care. A homecare package was approved for the boys in July 2013 and they went home last October. But the HSE contracted agency personnel sometimes did not turn up. Others were not trained to deal with the vital equipment. Since January the boys have been in LauraLynn Children’s Hospice Foundation but their parents want to bring them home. Deputy Murphy said: “It is not about money but about how the process is managed.”