Co-Founder of the Rett Syndrome Association of Ireland Joe Lawlor, who lives in Athy, is running, walking or cycling 5km for fifty days across Magney to raise money for a cure.
His daughter Nathalia suffers from Rett Syndrome, a rare neuro-developmental disorder that affects almost exclusively girls. One of the features of the condition is that the child will develop normally up to the age of 20 to 30 months. This is followed by a period of regression, resulting in severe and multiple physical and intellectual disabilities.
“Nathalia was perfect at birth,” Joe told the Leader. “It was only after eight to nine months that the symptoms started to appear.” Nathalia is now 11 and, like most other girls around that age, she recently made her confirmation. However, she has to use a wheelchair and is unable communicate.
“It’s a hard challenge 5km a day but it is nothing compared to what Nathalia goes through each day.
“All I want to do is communicate with my girl and that is why I am fundraising to speed up the process of finding a cure.”
For more information go to www.justgiving.com/joelawlor79.
_ Lisa Deeney